Monday, December 1, 2008

Thanksgiving 2008

Here are the long awaited pictures.  Slideshow only this time, sorry folks.  We're trying to improve the workflow so that we can update more often.  But, if you click on the slideshow, it will take you to picasa to view the album one by one.





Well, it's been a busy month/year.  I think that it is sad that there were more posts for 2007 than 2008, by quite a lot, and our little guy was only with us for 4 months of 2007.  What can I say?  We've been busy, and he's a handful (as you can see).

We had what should be our last major MCD surgery a couple of weeks ago.  KP had to stay in the hospital for a couple of days.  It didn't go as badly as I thought it would, though.  We had to go in on Monday for bowel prep, which if you remember involves lots of golytely (which doesn't at all), and NPO for KP.  

We went to the hospital totally prepared, and that helped.  Thank you Yo Gabba Gabba DVD! :)  That combined with Bachan's DVD player, meant that we were Gabbafied for our entire stay. :)  One of the nurses asked if that was the new Barney...well, I guess so. 

Okay, bowel prep wasn't so bad this time because KP was actually able to wear diapers.  This is the first bowel prep without an ostomy, and it's amazing how much smoother it goes. He only had one huge bed linen changing event, and that happened when Daddy was staying with him overnight, so that was okay. :) Tee hee.

Surgery went well.  I packed all of our bags just in case we had to go to PICU again, but he woke up fine and we got to return to our room (the packing helps).  We only had to stay overnight after surgery, and then we got to bust on out of there.  It was quite exciting.

Three weeks later, and I think that he is finally healing.  This one took a bit longer than the others, and I think that is because he is getting older now.  Each surgery takes a little longer to heal.  That being said, I'm not looking forward to his hand operations next year. Booo.

Anyhow, Thanksgiving was great.  We got to see Candy's family on Thursday at Cindy's and Lynn's family on Friday.  It was nice to see everyone.  Cindy's backyard is a wonderful oasis, and the site of our little impromptu photo shoot. :)  I have been inspired!  It also helps that the weather was so nice, that we sat outside to eat, and let KP just run around and play. I think that is the first non-shift meal that we have eaten since he's been born!

So, tomorrow we start our deaf ed classes at JJPearce.  I am officially enrolling KP into the school district.  I was filling out the enrollment forms, and they have a space for grade...I left it blank. :)  At least he's walking, so this feels less weird than if we had to enroll him when he was 3 months old like they originally wanted to do. :)  

We will be meeting with our deaf education teacher every Tuesday morning for at least the next 6 months or so.

Thursday we begin getting Developmental Services once a week as well.  This is the appointment that will end up transitioning to Speech Therapy once KP starts speaking.

So, our mornings are packed full of fun.  We now have just Wednesday and Friday mornings free.  Seems like there is something we can schedule there... :)

We also have our 6 month evaluation with our ENT tomorrow.  I will try to post how it goes.  It will be nice since we're meeting with our Deaf Ed teacher beforehand, though, because she is going to give us a list of questions to ask the doctor.  We'll be scheduling another ABR for February as well.

Finally, next Monday KP will be having another upper GI endoscopy.  Our hope is that everything is the same as it was last time and we don't have to keep going in.  If they have to dilate his esophagus this time, we will have to go in once every 3 months to have the procedure done again. Blech.

Well, that is all that I have right now.  Sleeping Beauty is beginning to stir.  I will try to update more often, I really promise this time. 

Let me know what you think of the new picture format.  Would you rather have the pictures one by one?  Did you like other slideshows better?  Would you prefer more frequent updates, even if there are no pictures (because the pictures are really what hold us up)?

Please post a comment answering some of the questions above.  And if you're an anonymous poster, please sign your post in some way so that I know who you are. :)

xoxo
Margot


5 comments:

  1. Everett looks like a Champion young man in that suit!
    Grandad Lynn

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  2. I LOVE these pics! I'm gonna have to get some tips from you guys! And what the heck happened to all of Dylan's facial hair?! So random, I know, but I was getting used to seeing him with it! :) So good to see that Everett is doing well and that the workload is lightening some for you guys!

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  3. Wow, He looks so grown up in his little suit. He is such a beautiful child. Enjoy him while you can for he will be grown up and testing and exploring his own independence before you realize it.

    Mamaw and Grandpa

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  4. These pictures are ABSOLUTELY fabulous! I love all of them (well, except for Logan and the statue!). Everett is so expressive and photogenic. His parents do know how to frame a shot! I'd like to have the one of him standing on my walk at the top of the stairs where the "201 N" is big in front of him. That is a frameable memory of him here with us. He was so funny - up and down the stairs, up and down, up and down, up and down the stairs. Be thankful he's so easily entertained. That won't last long! Love Aunt Cindy

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  5. I am sorry but I will have to get back to all the answers for your questions. And you know I will!! I have nothing but TEARS Of JOY at this moment. What an special young man GOD has given our family.

    I love you Everett!! You make your Aunt Katanna..smile, smile, smile and cry big hugh tears.

    Kiss, Kiss!!!! Sweetie

    Aunt Katanna

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