KP and I went to see his ear ENT this morning (because he has an ear ENT and a nose/throat ENT...I know, it doesn't make sense to me either) because he had an abnormal ABR on Monday.
It appears that he does have fluid behind his right eardrum. So, our ear ENT is contacting our nose/throat ENT to have him put a tube in KPs right ear. KP has never had an ear infection, but when we talk about his hearing, we are only talking about his right ear, because his left ear is a non-entity. So, they want to be proactive about this, because with the fluid back there it is causing a 30db loss, and we just can't afford that.
So, on Monday, KP will be having: adenoidectomy, esophogeal dilation, and a tube put in his right ear. Anyone else want to get on board?
Poor KP. I think we will be spending the night in the PICU again, because that is how his doctor likes to do it, but it's always possible that he will change his mind and we'll get to go home. The more procedures they add on, the less likely that seems, though.
I'm trying to update more often now, so keep your eye out for more small updates like this one.
xoxo
Margot
Thursday, February 26, 2009
Sunday, February 22, 2009
Looooong update
Whew. We've been very busy since the last update. Bachan was nice enough to update the holiday photos. So, that was Christmas/New Year's in California. We had a great time and KP got to play with his cousin and they had lots of fun on the stairs...for hours! :)
When we got back, it was straight back to work, and time to search for a new caregiver. :( Mrs. Laura's last day was February 13th. The slideshow below has some of the pictures that she was kind enough to give us. There are a few more from their Valentine's celebration that just didn't make it on here. She also gave us a few videos that are sooo cute. She was a fabulous caregiver, and we were completely spoiled by her. Now I think our view of all other caretakers will be forever tainted because she has set our expectations so high! So, if you know anyone in Keller that needs a caregiver, I can give a GREAT recommendation! :) We will miss Mrs. Laura A LOT! The really cute thing is I have shown KP these pictures, and asked him where each kid is and he smiles and points to them. :) It's pretty cute.
Anyhow, once we got back we also got to play the doctor game again. Once the craniofacial doctor and the ENT talked doctor to each other, they decided to go ahead and take out KPs adenoids before the palate repair. That was scheduled for January, but then KP came down with bronchiolitis, so that pushed us to the beginning of March. So, we'll be in the PICU again on March 2.
We also saw a geneticist in January, and aside from KPs nose being small (but incredibly cute), she does not see any additional syndromes present. Also, for any additional children, there is a low chance of recurrence. That was higher than what all of the other doctors have told us, but I know that we can handle whatever may come our way. Our appointment actually turned more into an appointment for me rather than KP. So, early screening time for Mommy. Woo hoo.
We've been seeing our AI teacher for Deaf Ed once a week, and KP has been making lots of progress. He is now signing more, daddy, ball, shoes, car, help, bottle, up, out, and he has a few more in development. :)
We have also been seeing a Speech Therapist once a week, and KP has been making lots of progress there, too. He can now say: t, m, b, p, and d. This is HUGE since d is the only consonant he has been saying since he was 3 months old. So, the addition of all these others is encouraging. He is also babbling more conversationally now. I think he really thinks we should understand him. I brought him out to the couch the other morning and got him tucked in, and he demanded "Yo Ga" for Yo Gabba Gabba, and once I got it turned on demanded "Ba". Hmm...maybe I'm not ready for this whole talking thing. :)
As you know, we've been doing timeout since he turned 1. This week he finally "got it", so when he does something wrong, we can now tell him to go sit in timeout, and he does. We have to monitor him pretty closely because he still thinks it is a game, but he knows where to go and that he has to sit with his legs crossed and his arms down.
He's also dancing all the time and helping around the house. He "fetches" items when you ask for them. :) And because I'm very particular about cabinet doors being closed and drawers being closed, he will go behind me and close anything that is open. :) He will also open drawers that he's not supposed to, get whatever he wants out, and then close them behind him. It is very cute, but it is also difficult to tell where he's been. :)
This is a really exciting time for us right now because he is developing so rapidly. He loves playing his piano also. He pretty much plays it at least twice a day. I tried to teach him chopsticks yesterday, and he got the first two notes. Still, pretty impressive for an 18-month old. :) I think, musically, he is starting to figure out that the notes go together. So, I think it's time for us to get the stickers for the keys.
Anyhow, I'm rambling now. One last thing and then I'm gone. KP took a tumble at his new daycare. He is okay, but his cute little face is a little banged up. He'll heal, and I think we notice it more than him...of course.
Thanks for checking in with us. :)
xoxo
Margot
When we got back, it was straight back to work, and time to search for a new caregiver. :( Mrs. Laura's last day was February 13th. The slideshow below has some of the pictures that she was kind enough to give us. There are a few more from their Valentine's celebration that just didn't make it on here. She also gave us a few videos that are sooo cute. She was a fabulous caregiver, and we were completely spoiled by her. Now I think our view of all other caretakers will be forever tainted because she has set our expectations so high! So, if you know anyone in Keller that needs a caregiver, I can give a GREAT recommendation! :) We will miss Mrs. Laura A LOT! The really cute thing is I have shown KP these pictures, and asked him where each kid is and he smiles and points to them. :) It's pretty cute.
Anyhow, once we got back we also got to play the doctor game again. Once the craniofacial doctor and the ENT talked doctor to each other, they decided to go ahead and take out KPs adenoids before the palate repair. That was scheduled for January, but then KP came down with bronchiolitis, so that pushed us to the beginning of March. So, we'll be in the PICU again on March 2.
We also saw a geneticist in January, and aside from KPs nose being small (but incredibly cute), she does not see any additional syndromes present. Also, for any additional children, there is a low chance of recurrence. That was higher than what all of the other doctors have told us, but I know that we can handle whatever may come our way. Our appointment actually turned more into an appointment for me rather than KP. So, early screening time for Mommy. Woo hoo.
We've been seeing our AI teacher for Deaf Ed once a week, and KP has been making lots of progress. He is now signing more, daddy, ball, shoes, car, help, bottle, up, out, and he has a few more in development. :)
We have also been seeing a Speech Therapist once a week, and KP has been making lots of progress there, too. He can now say: t, m, b, p, and d. This is HUGE since d is the only consonant he has been saying since he was 3 months old. So, the addition of all these others is encouraging. He is also babbling more conversationally now. I think he really thinks we should understand him. I brought him out to the couch the other morning and got him tucked in, and he demanded "Yo Ga" for Yo Gabba Gabba, and once I got it turned on demanded "Ba". Hmm...maybe I'm not ready for this whole talking thing. :)
As you know, we've been doing timeout since he turned 1. This week he finally "got it", so when he does something wrong, we can now tell him to go sit in timeout, and he does. We have to monitor him pretty closely because he still thinks it is a game, but he knows where to go and that he has to sit with his legs crossed and his arms down.
He's also dancing all the time and helping around the house. He "fetches" items when you ask for them. :) And because I'm very particular about cabinet doors being closed and drawers being closed, he will go behind me and close anything that is open. :) He will also open drawers that he's not supposed to, get whatever he wants out, and then close them behind him. It is very cute, but it is also difficult to tell where he's been. :)
This is a really exciting time for us right now because he is developing so rapidly. He loves playing his piano also. He pretty much plays it at least twice a day. I tried to teach him chopsticks yesterday, and he got the first two notes. Still, pretty impressive for an 18-month old. :) I think, musically, he is starting to figure out that the notes go together. So, I think it's time for us to get the stickers for the keys.
Anyhow, I'm rambling now. One last thing and then I'm gone. KP took a tumble at his new daycare. He is okay, but his cute little face is a little banged up. He'll heal, and I think we notice it more than him...of course.
Thanks for checking in with us. :)
xoxo
Margot
Sunday, February 8, 2009
My trip to California
Breakfast time at Bachan & Jichan's house ... yoghurt & toast...yummmm
All done
Jichan's breakfast tastes much better, especially when I get to sit on his lap
This merry-go-round was really fast... I think I like the slow Texas ones better
We played in the park...in the tall grass
...then I wanted up
Jichan picked me up... then I wanted down
Bachan knows the way to my heart is through my stomach ... popcorn, my most favorite snack
I got to walk up and down the stairs at the park near Bachan & Jichan's
Cousin Nadia and I got to play on the stairs while the grownups talked
All done
Jichan's breakfast tastes much better, especially when I get to sit on his lap
This merry-go-round was really fast... I think I like the slow Texas ones better
We played in the park...in the tall grass
...then I wanted up
Jichan picked me up... then I wanted down
Bachan knows the way to my heart is through my stomach ... popcorn, my most favorite snack
I got to walk up and down the stairs at the park near Bachan & Jichan's
Cousin Nadia and I got to play on the stairs while the grownups talked
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